Lupus and Sisterlocks

I was recently diagnosed with lupus, an autoimmune diesese that affects an alarming percentage of women with African ancestry. A side effect of this disease is unexplainable hair loss during lupus flares.

I am molting hair at an alarming rate. My combs are filled with hair and my edges, which were shot anyway, are almost non existent. I am concerned with losing locks once they are installed (SL b day in 21 days.)

Is there anyone in cyberland with Sisterlocks fighting lupus that can offer advice or pearls of wisdom?