I was recently diagnosed with lupus, an autoimmune diesese that affects an alarming percentage of women with African ancestry. A side effect of this disease is unexplainable hair loss during lupus flares.
I am molting hair at an alarming rate. My combs are filled with hair and my edges, which were shot anyway, are almost non existent. I am concerned with losing locks once they are installed (SL b day in 21 days.)
Is there anyone in cyberland with Sisterlocks fighting lupus that can offer advice or pearls of wisdom?
Turbie Twist, Product Review
10 years ago
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5 comments:
Okay, I just searched her blog. Nope not lupus but something else. The drug that she used to use is lupron. Looks similar to lupus but not related.
Shavonne, thanks so much for taking the time to look for me. I really appreciate it. I came across lupron in my google searches for lupus as well lol.
foxydiva,
I am currently fighting lupus. I will be honest with you I'm not really dealing with any hairloss at the moment. I went through a very emotional period of like six months where I dealt with that drastically. I touch on it a little bit in my blog. But the main reason for commenting is to give you some encouragement. It seems hopeless sometimes but you have to believe that you'll make it through. And if someone tells you your hair won't grow back or you'll be completely bald-don't readily believe it. Even doctors don't know it all. And remember everyone's lupus experience is not the same. Stay strong and if you ever want to talk you can email me. Good lucks with your sl's!!
Tee, wow thank you so much for reaching out to me and being very candid. Man, the big L is a mother this time of year isn't it?!?!?! I can deal with most aspects of the flares, but this hair loss thing really through me for a loop. I remember back in the day, I thought a great deal of my breakage was from perms (which is probably was) not knowing lupus was major part of that.
I was talking with an Aunt (well a good friend of my moms, but you know how we do) who was the first one to mention lupus as an option for my health issues. She is now considering Sisterlocks as well.
She has been rocking two strand twist for a while now in her quest to be more chemical free, like me.
I am only about six months into my diagnosis, and have switched to a primarily organic diet and am trying to eliminate as many unnatural substances from my life as possible. It seems the Dr.s just wanna give you legal crack and send you on your way these days.
If I come across any great products or tips, I will gladly share them with you. Thank you so much for the invitation to contact you. I'm sure as I will take you up on that through out both of these journeys.
I've been living with Lupus since 1991...and after the butterfly rash across my face, the hair loss started. I had waist length hair at the time and trust me i cried each time i combed. But i didn't go with Sisterlocks, however my cousin Terry who was stricken with MS later that year and who started to lose her hair , opted for them. It's been a process for her, but in the end it worked for her, it worked very well. I'm a two strand twist girl myself, but I find the locks to be very pretty. It doesn't hurt to try something new.
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